Ok guys I know we haven’t posted anything in, well, months. One of the two people running this has left tumblr, and I haven’t really had any ideas of what to post. But now that I’m currently in the hospital getting a video EEG, I have time to waste, and if anyone has suggestions on what I can post, feel free.
I just had an appointment with my neurologist, and I’ve been told that the VNS is my best option right now. Any new meds only have about a 10% chance of working. I know that Melvin already has the implant, but I wanted to know what everyone else thinks before I make the final decision. Please get back to me soon.
-Chris
For all of our followers, especially you new folks. If you have any questions, just ask. But first, I want to hear your stories. Tell us about yourselves :)
-Chris
- July 1
- , 2011
middlmot asked:
at both of the jobs i've had seizures at they haven't terminated me. They we're both food service jobs though and the work itself wasn't physical or labor intensive and I didn't have to drive or operate any dangerous machinery. What kind of job was it? I don't think they can just fire you like that unless it's stated somewhere before you took the job.
Both of these jobs were factory jobs, but my employers knew beforehand, and they never said anything about getting canned. I’ve checked to see if I can fight it, but I can’t find a lot of info. I’m headed for the Social Security office tomorrow since it doesn’t look like I’ll be working this summer. Fuck me, right?
-Chris
I lost my job today because I had a seizure while working. I’ve been there all of 2 and a half days, but that’s not what’s important. This is the second time I’ve been let go due to seizures on a job. Once last summer, and again today. I’m really afraid for my future because I can’t hold down a job for more than a few months, and that’s even if I can get hired in the first place. It’ll just be nice to know I’m not alone here.
-Chris
I figure we’re no longer “under construction” anymore. But feel free to give us your input.
-Chris
- June 10
- , 2011
Are there any people with epilepsy on tumblr?! I feel like this is one of the worst possible sites for them to go on with all the really flashy gif images. Be safe epileptics!
Actually, to all of our followers period, I just want you to know, you’re welcome with open arms :)
-Chris
Do any of you have an issue with sleepwalking? I’ve done it like, three times in the past month, and I have for years now (just much less frequently). My mom does this as well, so it may be a genetic thing, but the way it’s starting to happen more often is kinda getting to me. So yeah, if anyone can get back to me on this, I’d appreciate it.
-Chris
- May 25
- , 2011
I’m really happy to see someone made a blog dedicated to epilepsy. I unfortunately have suffered from seizures (hence my blog name haha) since I was thirteen and I really do find that most people are very uneducated about the condition. Sometimes I feel like epilepsy still has some kind of stigma. So.. Thank you! <3
-tonicclonic
- May 25
- , 2011
