Seizing The Day

Ok guys I know we haven’t posted anything in, well,...

Thu, 08 Dec 2011 23:32:00 -0500

Ok guys I know we haven’t posted anything in, well, months. One of the two people running this has left tumblr, and I haven’t really had any ideas of what to post. But now that I’m currently in the hospital getting a video EEG, I have time to waste, and if anyone has suggestions on what I can post, feel free.

Alright, I need some advice guys.

Wed, 06 Jul 2011 11:44:19 -0400

I just had an appointment with my neurologist, and I’ve been told that the VNS is my best option right now. Any new meds only have about a 10% chance of working. I know that Melvin already has the implant, but I wanted to know what everyone else thinks before I make the final decision. Please get back to me soon.

-Chris

For all of our followers, especially you new folks. If you have...

Fri, 01 Jul 2011 15:14:35 -0400

For all of our followers, especially you new folks. If you have any questions, just ask. But first, I want to hear your stories. Tell us about yourselves :)

-Chris

at both of the jobs i've had seizures at they haven't terminated me. They we're both food service jobs though and the work itself wasn't physical or labor intensive and I didn't have to drive or operate any dangerous machinery. What kind of job was it? I don't think they can just fire you like that unless it's stated somewhere before you took the job.

Wed, 15 Jun 2011 19:16:03 -0400

Both of these jobs were factory jobs, but my employers knew beforehand, and they never said anything about getting canned. I’ve checked to see if I can fight it, but I can’t find a lot of info. I’m headed for the Social Security office tomorrow since it doesn’t look like I’ll be working this summer. Fuck me, right?

-Chris

I want to know if this has happened to anyone else.

Wed, 15 Jun 2011 16:57:36 -0400

I lost my job today because I had a seizure while working. I’ve been there all of 2 and a half days, but that’s not what’s important. This is the second time I’ve been let go due to seizures on a job. Once last summer, and again today. I’m really afraid for my future because I can’t hold down a job for more than a few months, and that’s even if I can get hired in the first place. It’ll just be nice to know I’m not alone here.

-Chris

Unless anybody has any suggestions:

Fri, 10 Jun 2011 01:27:47 -0400

I figure we’re no longer “under construction” anymore. But feel free to give us your input.

-Chris

ericonline: Are there any people with epilepsy on tumblr?! I feel like this is one of the worst...

Sun, 05 Jun 2011 20:52:47 -0400

ericonline:

Are there any people with epilepsy on tumblr?! I feel like this is one of the worst possible sites for them to go on with all the really flashy gif images. Be safe epileptics!

To all of our new followers

Wed, 01 Jun 2011 10:29:39 -0400

Actually, to all of our followers period, I just want you to know, you’re welcome with open arms :)

-Chris

I have a question for my fellow epileptics:

Wed, 25 May 2011 11:50:00 -0400

Do any of you have an issue with sleepwalking? I’ve done it like, three times in the past month, and I have for years now (just much less frequently). My mom does this as well, so it may be a genetic thing, but the way it’s starting to happen more often is kinda getting to me. So yeah, if anyone can get back to me on this, I’d appreciate it.

-Chris

Thank you-

Wed, 25 May 2011 11:45:00 -0400

I’m really happy to see someone made a blog dedicated to epilepsy. I unfortunately have suffered from seizures (hence my blog name haha) since I was thirteen and I really do find that most people are very uneducated about the condition. Sometimes I feel like epilepsy still has some kind of stigma. So.. Thank you! <3

-tonicclonic

I'm pretty happy with the progress we're making.

Fri, 20 May 2011 11:58:10 -0400

I mean, having only started out a few weeks ago and now having 20 followers on an actual educational subject as compared to the drinking/pot blogs isn’t too bad at all. But still, I’d really like to continue to spread the word. Special thanks to Samantha for the very simple “Reblog if you have epilepsy” post; I think it’s a great way to pick up followers. Soooo, for those of us that do have epilepsy, go ahead and give it a click if you haven’t already. We can make this big.

-Chris

Reblog if you have epilepsy.

Fri, 20 May 2011 08:05:06 -0400

Hey guys sorry about the abscence!

Thu, 19 May 2011 20:16:57 -0400

Chris has had problems with his internet lately and my personal life is like a roller coaster right now. We’re still here though and always taking submissions and stories! Sorry it took so long to answer and post your messages!

By the way, If anyone ever has any ideas for how to improve the blog, or anything like that, let us know. We’re just two amateurs!

Peace guys!

-Melvin

My friend had a seizure today. It was only my second time witnessing one. I was talking to her about something then all of a sudden she was silent. She sat down on the bed next to mine and wasn't responding to my questions at all just kept looking back and forth. But it just seemed like she was ignoring me or thinking about something. When actually she was having a seizure. I kept asking her if she was okay but she didn't say anything just looked around. After about 1 minute of seiing she then stopped and tremmbled for a while. She got up without sayig anything and i noticed she had peed her pants. She didn't remember anything during or after she siezed but I remember. It's a shame that people have to go through this throughout their lives. But what is even more sad is that peple make fun of others that have zeizures when it is actually very serious. Next time someone sees someone having a seizure they should instead help them out.

Thu, 19 May 2011 20:11:57 -0400

You’re right. The sad thing is though a lot of people don’t really know what to do when people start convulsing and have a lot of misconceptions. I’ve had people tell me they thought I was going to swallow my tongue =P

my story

Thu, 19 May 2011 20:08:53 -0400

my story

Hey i'm brittany i love your blog about epilepsy! i have epilepsy (: i have had it since i was 4 im only 13 and it has effected my life in sooooo many ways. But the one thing i hate the most is i feel like i am alone since none of my friends have epilepsy or seizures. and i hate how people make fun of seizures like honestly if you had epilepsy im pretty sure you wouldnt make fun of it!

Thu, 19 May 2011 20:08:31 -0400

Don’t feel alone! That’s one of the reasons we started this blog. You’ll meet someone else in person who’s epileptic one day, even if you don’t know it.

Just curious

Thu, 19 May 2011 20:05:04 -0400

I was diagnosed about 2 years ago, I think. My form of epilepsy is called Juvenile Myoclonic Epilepsy - for those who aren’t sure what this is like it means that sometimes in the mornings I experience sort of ‘jerks’ in my muscles, its hard to explain how it feels..its like sometimes - at best - my arms will just jerk out or I just feel tense but I’ll forget what I’m talking about mid-sentence, at worst my arms and legs will go and most of the time I’ll fall, once I even fell down the stairs (about a year ago now) and I still suffer with the whiplash it caused on my neck. I can’t even count the amount of grazes, cuts, carpet burns etc I’ve gained. But yeah that’s my brains way of getting rid of all the excess electrical stuff in our brains that us epileptics have. Sometimes it causes full on seizures, I’ve only had 3 thankfully, and even more thankfully I don’t remember any of mine. Most of the mornings that they happen on are in bits and pieces and it try to piece together as much as I can through whoever else may be there’s storeys of what happened. I’ve even invited someone round in the evening of the day I’ve had a fit because I’d forgotten and my memory isn’t so good straight after.

I was wandering what other peoples stories were about how they told like their friends? It may sound silly but for about a year I was sort of too scared to tell people, incase they started treating me differently..I mean I know its stupid because I would never treat anyone different because of something like this. But I did tell some people - unfortunately most found out about it the morning after a friends house party when I had a fit in front of them all - not ideal. It was awful and I cried after it happened. I often cry after them or even when I’m walking somewhere or in public and I jerk because I know that people won’t know it’s not my fault its just my epilepsy. I’m scared they’ll be like ‘what a weirdo’ or ‘why is she doing that’ or even think im on drugs or something. But yeah now I’m trying to be more open about it. I can talk about having it and what its like..but certain bits I can only talk to close friends or family or my boyfriend about. For example, the bad side of it - the times that make you feel awful, or when I’ve jerked infront of people and they’ve given me funny looks etc.

Anyone feel free to submit saying how they feel about their epilepsy in respect to talking about it and telling others about it or even how they told their friends when they were diagnosed :) I’d be interested to find out.

Thankyou.

First Seizure

Thu, 19 May 2011 20:04:10 -0400

I was only diagnosed with Epilepsy in August and I had my first seizure(that I know of) on Christmas of last year, meaning Christmas of 2009. Over that Christmas break, I got in the habit of staying up pretty late, so I was just sitting on my bed, checking stuff out on the computer and it was getting to be about 2:00. My stomach started hurting really badly, so I assumed that it was because I was tired. However, after lying in bed for awhile, the pain wasn’t leaving and I wasn’t even able to sleep, so I went downstairs to the kitchen, thinking that it was because I was hungry. Luckily, my mom was down there already and she commented on how pale I looked. The pain started getting worse and I asked her to make me something to eat really quickly. I sat down at the kitchen table, resting my head on my arms and the next thing I knew, I was lying on the floor. I was hot, sweaty and I couldn’t see straight. My mom immediately got me something to drink about brought the sandwich over to me. Once I thought I was okay, she got me back into the chair, but it happened again, and this time, I hit my head on the corner of a wall that jets out of the doorway.

That was when aaaaaall the testing started.

I don't really know what seizures look like...

Mon, 09 May 2011 23:36:08 -0400

I’ve been epileptic for almost 13 years and my little brother is epileptic too and I’ve never actually seen one. I’ve been on camera having an absence seizure or anything like that and brother’s and very controlled so I just have to go by what other people tell me. I look “spaced out” but I feel like I can do that on purpose. I’ve had other people tell me what my grand mal seizures look like too when I have them and I’ve seen media portrayals of them too but I’ve never seen one in person either.

In a way I’m glad I haven’t seen a grand mal; it must be really hard to watch. At the same time though I’d still like to see what my body really goes through instead of just waking up and being told what it looked like.

Have you ever seen anyone else have any kind of seizure?

Mon, 09 May 2011 23:17:52 -0400

Send us your story!

-Melvin